Barking and Dagenham
Sickle cell disease is the name for a group of inherited conditions that affect the red blood cells. The most serious type is called sickle cell anaemia.
Sickle cell disease mainly affects people of African, Caribbean, Middle Eastern, Eastern Mediterranean and Asian origin. In the UK, it’s particularly common in people with an African or Caribbean family background.
People with sickle cell disease produce unusually shaped red blood cells that can cause problems because they don’t live as long as healthy blood cells and they can become stuck in blood vessels.
Sickle cell disease is a serious and lifelong condition, although long-term treatment can help manage many of the problems associated with it.
- Ensure that all affected persons can live normal pain-free lives.
- Increase awareness of Sickle cell and educate sufferers, their carers and communities.
- Minimise fatality as more people are made aware of the illness.
- Advice how it can be prevented or managed/treated.
- Alleviate poverty amongst the patients.
- Provide counselling and advise to the group.
- Drop in Sessions.
- Befriend and mentor the group.
- Organise seminar in the community.
- Organise home and hospital visit.
- Help and support members of the group when needed.
- Promote and educate patients about the importance of food and nutrition.
- Provide a point of contact for first-hand information and encouragement to patients, their carers and general public who require more information and resources.
- Help improve the health of Sickle cell patients and their ability to enjoy and pursue their livelihood.
- Empower sufferers, their carers and the local community in terms of building their capacity to participate; train; organise events and provision of care for themselves and others.
- Solicit funds from public, voluntary and private sources to support the organization’s programs.
- Raise the awareness of Sickle Cell Anaemia Disorder and its causes, primarily within the communities, towards preventing the further spread of the illness by producing educational material, for use by health agencies, professionals, establishments and other providers in the community.
- Meet and discuss issues that may be of concern to the group, such as hospital needs, treatments, schools and support networks as well as bring a voice for its members.
- Help identify and highlight gaps in services provided by health and social care departments and as a result lobby the government and policy makers.
- Create and maintain a reference and related data base on sickle cell disorders in UK.
- Deliver counselling services to affected individuals, their parents and other carriers of the sickle cell trait.
- Maintain a reference library on sickle cell.
Constantly monitor and periodically, evaluate services provided in pursuance of the aims and objectives of the centre.
- We will be better able to empower and assist people with sickle cell disorders to achieve their full economic and social potential.
- To organise social events for members and their families
- For more information about Sickle Cell Visit http://www.nhs.uk/conditions/Sickle-cell-anaemia/Pages/Introduction.aspx